MADE SUARTANA

The two siblings live in the Karangasem regency with their parents and older sister . They are aged 11 and 1 years old.  Both suffer from epidermolysis bullosa, a rare and extremely agonizing skin condition which causes the skin to break out in painful blisters as a result of even minor friction or abrasions. This…

Komang is a 13-year-old boy living in the Bangli regency with his parents. He has the rare genetic skin condition harlequins ichtyosis .He is immobile due to limb contractures. Despite his issues he attends school and loves to sing. He has been thoroughly assessed and is monitored every month by a specialist dermatologist . He…

are part of two impoverished families with seven severely disabled children between them with ages ranging from 5 years to mid 20s. They live in Denpasar. They are severely impaired due to genetic Muscular Dystrophy, Scoliosis, and were malnourished. They have gained weight and with regular therapy, their deterioration has slowed down. They are much…

Mbok Nengah is a 37-year-old lady living in Karangasem. She is learning impaired, has mental health issues, malnutrition and was living in a shed, lying on a dust floor.  She receives medication and has improved considerably. She is able to help feed the cows and assist sweeping the floor. She has now relocated to a…

Rianka is a 4-year-old little boy living in Badung. He has a severe heart defect which required a series of surgeries in Jakarta.  Supriani is an 11-year-old girl from Gianyar. She was born with a severe heart defect which required surgery in Jakarta. Both children are now leading full lives and are much healthier. They…

is a 37-year-old male living in Singaraja. When we met him he was chained up due to his very aggressive outbursts caused by an untreated mental illness. Komang’s improvement has been dramatic since his medication regime has been commenced. He is now leading a free life and has begun to take care of himself in…