Komang is a 13-year-old boy living in the Bangli regency with his parents. He has the rare genetic skin condition harlequins ichtyosis .He is immobile due to limb contractures. Despite his issues he attends school and loves to sing. He has been thoroughly assessed and is monitored every month by a specialist dermatologist . He now has an electric wheelchair which has enabled him to be more independent. His bathroom was renovated to include a bath tub as soaking is a vital part of his skin regime.  Monthly Sponsorship needed: Ensure 2 tins IDR 600k/  ( 42 USD ) 2 water truck deliveries  IDR 700k/month (50 USD ) QV wash and cream Bicarbonate of soda SPONSOR KOMANG

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